Bettina wants to live – like you, like all of us. The 31-year-old from Zurich in Switzerland suffers from spinal muscular atrophy (SMA).
In Bettina’s case, the disease has already progressed so far, that she can only move her left index finger, apart from her eyes and her mouth. However, this is vital for Bettina: With this she can keep in touch with her friends, drive her electric wheelchair precisely – and write her PhD thesis.
In the meantime, however, the strength in Bettina’s index finger has diminished. Speaking is becoming increasingly difficult.
Sheer survival is a daily feat of strength.